Friday, September 27, 2013

A favor, please

Dear Readers,

I'm not looking forward to this next month. In fact, I'm dreading it.

In the next week, I will have to take Morgan to the neurologist to begin testing for seizure activity and then, on Friday, I have my consult for my surgery for removing endometriosis from my bowels.

Fun stuff, huh?

I always say that when one shoe drops, get ready for the next one... because God knows, it will hit. But I'm kind of a pessimist.

I know that insurance will not cover the full cost of my surgery. Our insurance is just plain crappy like that. We have a deductible to meet and it's high. To put just our drug plan into perspective, each month, I spend $97.00 on one drug, just one, and that's for me.

You can't see the pillow & heating pad separating me from my loves
The best things about the month of October are Morgan's birthday and Halloween. I love, love, love planning parties, but this year, I know, will be different. I will be recuperating from surgery. I might not be my "normal" self. With the OOP (out of pocket) expenses, things will be tight. Also, this kid (and his brother, to be honest, who isn't handling things well at all), needs cheering up from dealing with his mom being ill.

Even at my best right now, I'm limited on what I can do. I cannot stand for long periods of time because I will double over with excruciating pain and pass out. I vomit- a lot. I cannot drive right now because I never know when I will pass out. I cannot do all of the 1,001 things I normally do.

We're cuddling a lot, but I cannot stand to have them touch me because the pain is that intense. It's like childbirth, but worse, because it never ends.

They are witnessing me pass out, vomit, and/or scream from sheer pain, even when I try to hide it from them. This is not something a child should ever see. Ever. They are worried and it shows.

We need some cheer, y'all. 

So, I'm going out on a huge limb here. I'm doing something that I would never think to do in a million years.

People keep asking me, virtually, how can they help? I keep mulling this over and this is the only thing I can come up with. I'm asking that each person who reads this blog send Morgan a card, if you can. You can send a present, if you want, but a card would rock his socks off.

Please, help me cheer my kid(s) up. Help me make Morgan's birthday extra special. He knows that I write this blog about him and our family. He loves mail, in any form. He loves postcards from different places, cards, packages, etc.

Bay does, too. I'm including him in this because, frankly, it's confusing as hell for his five year old brain to process his mommy being in this much pain and passing out from it. Also, sibling rivalry isn't pretty.

Messages posted to my Facebook wall are great, too.

Morgan's birthday is in the third week of October. I'm hesitant to post his actual birth date until the actual day because of privacy issues. I feel like I'm already baring my soul and pride in this post and blog so much, so some things should be kept private until they cannot.

Should you choose to send something to my son(s), here is how:

You may mail letters, postcards, cards, or packages to
Morgan
c/o Thomas Cash
Laborde Products
74257 Hwy 25
Covington, LA 70435

Morgan loves Thomas the Tank Engine (obviously, there are whole posts about this) anything. There is a new movie out called "King of the Rails" which he is incredibly excited about and there is a ton of paraphernalia surrounding it. He also likes Mario Kart, books on trains, Clifford the Big Red Dog, the ocean, reefs, and shells. 

If you're interested in sending something to cheer up Bay, he loves Legos sets, Skylanders, art supplies, books on anything (especially level 1-2 readers), and Minecraft. 


From the bottom of this mom's heart, thank you for the love and support that has continued to pour forth to me and my family. If anyone every tells you that online friends aren't real, they're lying. I've had more people check in on me to give me a laugh or offer an ear this week than I ever thought possible. 

Love,

Jessi


18 comments :

  1. We too are strapped for cash at the moment, but you let those little cuties know here at Aspie Love Inc. we are thinking of them and their awesome mama. Bless you and those precious kiddos honey.

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    1. I will. Thank you so much for your kindness. ~Jessi

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  2. This is not too much to ask at all! And, it is a great idea! I will be keeping my eyes open for some special treats. :) And I suffered from endometriosis as well and I agree with you......it was far worse than natural labor. I feel for you. Mine wasn't as bad. I hope that they can take care of this once and for all this time. Great idea Jessie. Keep your eyes open for something from me. :) Hugs! Wendy (Bugaboos Treasures)

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    1. Thank you, Wendy! And endo can suck it. I hate this crap.

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    2. Just awful! Doesn't it know that you have too much to do to be laid up?! Grrr!

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  3. Sounds like my story... it gets better (the endo) as you get older, but no one can know the pain until you experience it. It is unreal. My son Ethan and I will be shopping for your boys. I pray for you to heal and feel good again! Another Autism Mom, Theresa

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    1. Thank you so very much. I hope the endo gets better. It HAS to. I had that complete hysterectomy for a reason! lol. This is just insane, to me, that I can be in this much pain and still live. It's not like it's cancer, but my God... I'm in pain. An unreal amount of pain. Again, thank you so much. ~Jessi

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  4. I am sorry your family is going through this. I have two NT kiddos and my son, Alex is ASD. I have fought endometriosis since i was 15 and was diagnosed with Fibromyalgia a couple of years ago. I had a hysterectomy this year to help relieve sone pain. My kids have a hard time seeing me hurt, too. I am sorry yours have t see you this way. I hope the surgery goes really well. May your little man have a wonderful birthday and let those babies know we are out here rooting for you.
    A mom who can relate,
    April

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    1. Thank you. I'm so sorry you had to go through that, too.

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    2. My prayers are with you.

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    3. I have fibromyalgia and chronic pain syndrome. I used to babysit my grandson who has SPD. But lately the neuralgia, pins and needles pain in my body and especially my hands has been so bad I can't drive a car or do a lot of things I'd like to. So I definitely can empathize with you. Though your situation is much worse than mine. I hope the birthdays are very nice and that everything goes well.

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  5. I have endo too and had the surgery you mentioned two times over the years. it helped for many many years so they is hope you will feel better soon.

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  6. I can't say I know how you feel because the truth is I don't. I had endo hen I was 18 and got amazingly lucky and it went away...we however will be taking our son (4) with Aspergers, OCD, SPD, and very high anxiety to the Neurologist in November. I can relate there and am so scared its ridiculous. he has seizures but with his he just spaces out for a minute and then he comes back to us, but won't remember it. It would be my honor to send the boys something special. my heart and prayers go out to you and your family. Good luck and know we are all thinking of youand sending you happy thoughts!

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  7. Sweetie, I've got two outta three that are autistic here. Let me see what can be done after the first. I'm sure that what fresh hell is this can do SOMETHING, even if it's a gift card... Any preferences on that?

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    1. Um... he really loves Target. But really, you don't have to get him anything. I know you have your hands full :) Thank you.

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  8. A card to Morgan is en route via Postgram!

    You and your family are in my thoughts and prayers! I hope you get well very, very soon.

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  9. A package is in the mail today Jessi. Sorry it took so long!

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    1. Amy, it is perfectly okay. He has been spoiled beyond belief. I'm in everyone's debt and have so much gratitude for the outpouring of love that has been shown for Morgan and Bay. I have been shocked by it, really. So, thank you for your generosity. A million times. ~Jessi

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